Joint Epilepsy Council (JEC)

The Joint Epilepsy Council (JEC) provides a way for 22 diverse epilepsy organisations to work together effectively.

Po Box 186
Leeds
West Yorkshire
LS20 8NH

Tel: 01943 871852
Fax: 01943 871852
Email: sharon.jec@btconnect.com
Website: www.jointepilepsycouncil.org.uk

Contact Person: Sharon Harvey
Position: General Secretary

Charity Number: 114315

Description:

The Joint Epilepsy Council (JEC) provides a way for 24 diverse epilepsy organisations to work together effectively. By facilitating communication and sharing information, the JEC is able to support member organisations, maximise resources, exchange skills and expertise, help avoid duplication of effort, promote good practice and identify unmet needs.

Type of organisation:

National sub sectoral umbrella body or infrastructure organisation, providing services to member voluntary organisations within a thematic sub sector (e.g. youth, health etc.)

Services:

Advice and support, Campaigning, Conference organisation, Consultancy, Development of standards, Information, Lobbying, Media work, Member directories, Networking, Newsletters, Policy development, Publicity and promotion, Publishing.

Full time staff: 1
Paid staff: 1
Volunteers: varies
Organisational members: 22
(Although the JEC only has one full-time, paid member of staff, it's ruling Executive Committee is composed of senior personnel elected from it's 24 member organisations. Similarly, working groups and limited time project groups are made up of staff from member organisations.

Membership Criteria:

Application to membership of the JEC is open to any organisation in the UK and Ireland that works to meet the needs of people with epilepsy and their families or carers.